Heading to Riley Childrens' Hospital, today...Evabeth has her last routine visit with the neurologists at Riley. Her Dr. is Romanian and she can do a hilarious imitation of him, "Soooo... Ow are yu veeling today?" Like a Transilvanian Vampire! Even he laughs when she does it for him. She has been doing so well on her medication and I am pretty sure we'll skate through this visit. While she isn't cured, the difference in her is so great that we feel that we can certainly be very happy and feel very blessed with her current condition. She told me last night that she was going to outgrow it and I thought, "From your mouth to God's ears, little one." I will be glad to wrap up our visits at Riley- they are very good to us there, but it will be nice to come back home and have visits with the local drs- like normal people. At least until she has a growing spurt. Then it'll be back to the circus. But she is only 7 so I figure she has a couple years until... things change. Lord willing.
How do you like our "do's"? I wear my hair pulled up most of the time, and the girl's wanted theirs up, too. Of course Abe had to have his picture taken, too. Eva's dress is a sore point with me. You didn't notice it? I really don't like fussy clothes- lace or big flowers... but a friend made it and Evabeth loves it- of course! So she gets to wear it around the house- didn't want you thinking I'd let her out of the house in that giddup. It looks like a curtain, doesn't it? A little Von Trap child. The more froo-froo, the more she likes it. Typical 7, huh?
Update: Bummer. Because Eva had a severe convulsion in the past 6 months, and she still has some abnormal brain activity, her meds are being increased and she isn't being released from the specialists' care. No big deal really. I guess I was just ready to get on with our lives. Which of course, we still can. 6 more months. We can do that.
Beautiful picture! And what good news about Eva!
ReplyDeletePersonally I think Evabeth is just gawwwwwwwwgeoous in her fru-fru dress. Sort of resembles the dresses your grandmother made for me when I was little. Of course when I got older I had to iron the same kind of dresses for your mom and Pat so Kathy didn't get those kinds of clothes.
ReplyDeleteThose children are absolutely adorable! Love those "dos"!!! So glad things are going well for Evabeth. Now you let that little one have her frills and lace!! LOL
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ReplyDeleteI love your picture. Everyone deserves a fru-fru dress. Because wayyy tooo soon we outgrow them.
ReplyDeleteP.S. I'm the one who deleted earlier---too many typos.
Fru-fru, huh? I'll have to remember that...*rubs hands with suspicious snickers*.
ReplyDeleteIt really is funny, because I would expect it more from Boo.
Love the do's...Abe's too!
XO XO XO XO Mom
Say Buna Ziua to that Romanian doctor for me - was living there before Finland. Best wishes to your little one.
ReplyDeleteWhat great news!!! I'm very happy for you!
ReplyDeleteYour comment you left over on my blog gave me chills. Loved reading that! And isn't it funny how God has to show us...and show us....and show us...and sometimes bonk us on the head before we "get it"? Why is it so hard for us sometimes to just let him do what he does? LOL
Hope you're having a great week!
God bless :)
love the hairdos and the dresses and your Abe is a little doll
ReplyDeleteWEll now aren't ya'll all gussied up? Beautiful as ever and Oh Abe is handsome! LOL So we have to make our appointments at Riley the same time so we can have family time at Rileys. ROFL That just sounds wrong. ROFL
ReplyDeleteLovely picture. Evebeth will be in my prayers.
ReplyDeleteI just know she'll be fine. Better to know what's going on.. We'll keep the prayers coming...
ReplyDeleteSorry that you still have to continue going to the specialist...but great news that she is doing so well. Prayers will continue.
ReplyDeleteSorry you have to go back to the doc again, but sounds like Eva is doing well right now - which is the important part. Aw, let her wear her frou-frou dress out - she loves it and that's what matters.
ReplyDeleteI think EvaBeth needs yet another frou frou dress. What size does she need? LOL! And yes, another 6 months can be done - especially knowing that you have the backstop of the specialist during it all. 6 months will be a piece of cake - and I, too, love the picture!
ReplyDeleteDon't all neurologist talk like that? Mine does! and she's never met him! I think it's a requirement for getting into that speciality.
ReplyDeleteSorry for the delay, but 6 months will go like lightning. The do's are quite impressive!
Your doctor must just be delighted when he sees that little angle up on the exam table...what a sense of humor!
ReplyDeleteJust think what a climb you've already endured with Eva's health. You know so much more than you did 6 months ago...and will feel good about when you reach the summit after these next few months.
Love the do's! I'm sure the Von Traps would approve as well! I like Abe's bristle top too!
That green looks terrific on you Nines, by the way! Or...perhaps it's the reflection of Eva's flowers?!? ;-) ;-) ;-P
Romanian doctor.... hmmm. Let me know if you need a translator. I pray all your children will be forever healthy and beautiful, like their mother. And I hope they will all be as smart and faithful as their father.
ReplyDeleteBarbara had surgery yesterday (appendix no more). She is home and resting today.
Just posting now... because I can
alan
sweet photo...the do's are wonderful-oh to enjoy daughters, what a delight, even if they have fru-fru taste :-) here's hoping the next six months pass with no challenges for Eva and the specialist releases her then.
ReplyDeleteI love her confidence in outgrowing it!